So I met w/Dr. I this afternoon. While I continue to feel a bit better each day, I've had a few concerns that I wanted to discuss w/him because the last thing I want is for something to happen that would cause me to have to delay my vacation. My primary concern was that I've still been having fevers at night - they don't get that high but they're to the point where I would have to get them checked out at urgent care. Dr. I said that it is not umcommon for people to have this kind of reaction to radiation and that he's confident that the fevers should go away over the next week or so. My feeling is that it is possibly a wbc count issue as well, given my history. Today my wbc count came in at 2500 which is decent but still in the range where my temperature fluctuates. He broke down the blood cell counts even further and the number of disease fighting cells is quite good and the number of new cells that will develop into wbc's is high - Dr. I sees these as very positive signs and expects I will feel much better over the next week. My red blood cell count is quite good too, despite the fact that I no longer take iron - he says this is a very good indication that the tumor has reduced a lot more. We're both hoping for total elimination, of course, but I'll take what I get. Another problem I've been having is that I feel nauseas and don't really find anything appealing to eat - each meal is a bit of a struggle to force myself to ingest enough to keep from losing weight. Dr. I says this is pretty standard and not to be concerned about it - it should also go away in the next week or 10 days. Finally, I've been having trouble sleeping - part of this has to do w/the fatigue (which, ironically, makes it difficult to sleep) and part of it has to do w/the fevers - Dr. I has recommended that I take tylenol before going to bed which should take care of the fever issue. In fact, last night I took some tylenol and had a great sleep so I was happy that he was cool w/it. Fatigue is still a problem but as I do more, it gets better incrementally - once I start getting some good night's sleep it should improve even quicker. I just gotta keep moving :) My hair seems to be coming back w/a vengence. My facial hair had gotten a lot thinner and lighter (almost the color of my skin, so you could barely see it) - the other day I woke up and, to my amazement, once again had a visible goatee (well, van-dyke for those of you who have been following this blog). The hair on my head is also coming back much thicker - it's been just over a week since I had it shaved and it's already pretty fuzzy all over. Still not quite normal thickness but getting there.
Dr. I and I also discussed the schedule for the next portion of my treatment. I will be returning from vacation on 1/14 so here's the overall plan:
Week
------
1/15 tests - cat scan, pet scan, endoscopy
1/22 consult w/Dr. I and Dr. B (the surgeon) based on the tests
1/29 surgery
I have tentatively scheduled the dates for the tests and the consult w/Dr. I and Dr. B and will publish those once they've been confirmed. The actual date of the surgery won't be set until the consult the week of 1/22 but will be for the following week.
So I won't have any evaluations before leaving for FL - would like to have had some indication of progress but it makes the most sense to have the tests done as close to the surgery as possible. For now, it's time to relax and forget MSKCC for the next several weeks (Dr. I's orders :).
cheers,
--Dr. D
Wednesday, December 13, 2006
Monday, December 11, 2006
... And Then There Were None ...
Had my last radiation treatment today. Yehaw! Afterwards I met w/the Dr covering for Dr. M along w/the nurse I've been seeing since treatment began. All in all, I've dealt w/ the side effects of the radiation pretty well so there wasn't much to discuss. They also performed some blood work on me to check wbc count etc - I haven't got the results yet but if there were any problems they would have contacted me. Didn't sleep well last nite, think I was too excited about the last treatment, so I ended up staying home rather than going to work today. I'll play it by ear tomorrow depending on how I feel but I expect I'll go in for a while anyway.
--Dr. D
--Dr. D
Saturday, December 09, 2006
... 1 ...
tho I do have to wait until Monday for that last one. Doh!
Overall feeling okay. Yesterday I felt tired and nauseaus and ended up leaving work early. Had a slight temperature in the evening but not enough to have to go to get evaluated (thankfully). Today, I'm doing pretty well - no temperature, bit nauseaus but better than yesterday, and a bit fatigued but better than yesterday. Going to go for a walk in a little while - not sure how far I'll get, it's still kinda cold out today :) Hopefully I'll keep improving through the rest of th weekend and will feel pretty good next week.
Came home yesterday and got a care package from my sister M. Always a nice surprise.
--Dr. D
Overall feeling okay. Yesterday I felt tired and nauseaus and ended up leaving work early. Had a slight temperature in the evening but not enough to have to go to get evaluated (thankfully). Today, I'm doing pretty well - no temperature, bit nauseaus but better than yesterday, and a bit fatigued but better than yesterday. Going to go for a walk in a little while - not sure how far I'll get, it's still kinda cold out today :) Hopefully I'll keep improving through the rest of th weekend and will feel pretty good next week.
Came home yesterday and got a care package from my sister M. Always a nice surprise.
--Dr. D
Thursday, December 07, 2006
... 2 ...
One more down. Ran into Dr. M's nurse afterwards, she asked how I was doing, told her I was pushing through it. She told me that the side-effects of radiation generally peak and recede during the first 2 weeks after the final session - luckily I haven't been suffereing too much from side-effects from radiation (probably maksed by the side-effects from chemo) but I don't want to take anything for granted so I'll be prepared for it (e.g. - keep walking, be careful of spicy foods, etc).
Feeling kinda rough today but a pretty standard Thursday overall, bit of cramps being the worst of it so far today. Slept pretty well last night but I think fatigue is starting to catch up w/me again. Plan to take a long walk home tonite to fight it (but not too long - getting cold out). Lorraine is going to drop by this evening w/some chili (and a bit of company) for me - sure appreciate it on these kinds of days. I probably won't be very good company myself but it will be nice to have someone around for a while.
Can't wait for tomorrow - and another one down :)
--Dr. D
Feeling kinda rough today but a pretty standard Thursday overall, bit of cramps being the worst of it so far today. Slept pretty well last night but I think fatigue is starting to catch up w/me again. Plan to take a long walk home tonite to fight it (but not too long - getting cold out). Lorraine is going to drop by this evening w/some chili (and a bit of company) for me - sure appreciate it on these kinds of days. I probably won't be very good company myself but it will be nice to have someone around for a while.
Can't wait for tomorrow - and another one down :)
--Dr. D
Wednesday, December 06, 2006
... 3 ...
So this morning, when taking my anti-nausea meds, I discovered that I'd forgotten to take my anti-naseua meds yesterday. Result - felt kinda nauseaus yesterday but slept quite well last night. Today, I took the meds but felt pretty nauseaus all day - think that's because I forgot the dose yesterday and it caught up - not something I'd expected. Still, not any worse than a standard Thursday or Friday so a bit of ginger ale (and ginger candy from chinatown) helped alleviate the problem. Still having the standard side-effects too - legs feel kinda like lead, hands shaking a bit, some difficulty concentrating and lack of appetite - but they're easier to deal with knowing it's the last time. Eating's the biggest problem - very easy to skip meals when you're not hungry at all but you ultimately feel worse for it - finally forced myself to eat some beefaroni tonight. I know what ur all thinking - ughh - but it has a good amount of calories in a relatively small amount of volume which is perfect for this kind of situation. Currently drinking some high-calorie cranberry spritzer, also good for this situation. My throat is getting a bit more sore now from the radiation, going to be a race between the number of treatments left and the effects on my throat - hopefully I won't have to go to pureed food but, even it I have to, it shouldn't be for too long and, if starts getting too uncomfortable, they have meds to help deal w/it.
Dr. I's office called this afternoon to schedule my appointment for next week - turns out it will be on Wednesday rather than Monday so I won't have much info from him until then. Plan to ask him about the effects of skipping the anti-nausea meds on Tuesday to see if he has any thoughts about it.
BTW - I've taken up the hobby of watching old music videos from the 80's on YouTube - if you haven't checked it out yet, I highly recommend it :) Well, youtube anyway, you can pick ur own kind of videos.
--Dr. D
Dr. I's office called this afternoon to schedule my appointment for next week - turns out it will be on Wednesday rather than Monday so I won't have much info from him until then. Plan to ask him about the effects of skipping the anti-nausea meds on Tuesday to see if he has any thoughts about it.
BTW - I've taken up the hobby of watching old music videos from the 80's on YouTube - if you haven't checked it out yet, I highly recommend it :) Well, youtube anyway, you can pick ur own kind of videos.
--Dr. D
Tuesday, December 05, 2006
4 Left
Radiation treatments, that is. Today's treatment was also delayed as two machines were down for the count - pretty unusual, I've only seen machines out-of-order due to scheduled maintenence up to this point but I guess they have to be pretty cautious when they're dealing with these types of machines (I know *I* want them to be cautious when they're aiming them things at *me*).
Afterwards, I went and got my head shaved again. It was really starting to look fuzzy. The hair is still thinner than usual and a little thicker around the ears so it looks a lot better now. It should start coming in a lot thicker and more even over the next couple of weeks given that I've finished chemo tho I haven't decided what I want to do w/it long-term - still kinda diggin the smooth, shiny look :)
When I spoke to Dr. M yesterday he told me that Friday would be his last day at MSKCC; he's moving to the medical center at the University of Chicago. Defititely a loss for MSKCC, I'm glad he was there for me. We discussed my surgeon, Dr. B, and he said that if he had esophageal cancer, he'd fly back from Chicago to be treated by him. Everyone says Dr. B's the best.
Finally, next Monday I am scheduled to meet w/Dr. I to discuss what's next in terms of scheduling evaluations and the surgery. Will keep you posted on that.
--Dr. D
Afterwards, I went and got my head shaved again. It was really starting to look fuzzy. The hair is still thinner than usual and a little thicker around the ears so it looks a lot better now. It should start coming in a lot thicker and more even over the next couple of weeks given that I've finished chemo tho I haven't decided what I want to do w/it long-term - still kinda diggin the smooth, shiny look :)
When I spoke to Dr. M yesterday he told me that Friday would be his last day at MSKCC; he's moving to the medical center at the University of Chicago. Defititely a loss for MSKCC, I'm glad he was there for me. We discussed my surgeon, Dr. B, and he said that if he had esophageal cancer, he'd fly back from Chicago to be treated by him. Everyone says Dr. B's the best.
Finally, next Monday I am scheduled to meet w/Dr. I to discuss what's next in terms of scheduling evaluations and the surgery. Will keep you posted on that.
--Dr. D
Monday, December 04, 2006
Chemo Done!
Long day today (started at 9:15 and ended at 6:30) but I got radiation in the morning and (final) chemo in the afternoon. The day went long due to a number of delays - one of the radiation machines broke down which slows things quite a lot and then my chemo meds were ready by 2:30 but they weren't able to get me in until 4 due to a large backlog of people - both unusual occurences but I didn't care so much as I just wanted to get the treatments.
So my wbc count today was at 2700 - more than enough for chemo but still kinda low. The rest of this week is likely to be rough as it will be combined chemo and radiation but, as of next week, I should start getting stronger and feeling better. Can't wait for that :)
Keep sending the positive vibes,
--Dr. D
So my wbc count today was at 2700 - more than enough for chemo but still kinda low. The rest of this week is likely to be rough as it will be combined chemo and radiation but, as of next week, I should start getting stronger and feeling better. Can't wait for that :)
Keep sending the positive vibes,
--Dr. D
Sunday, December 03, 2006
Treatment Schedule
When Dr. I cancelled my chemo last week, he also took me off of my radiation treatments. Both chemo and radiation can negatively affect your wbc count (chemo much more so than radiation for my particular treatments) and so they don't do either until your counts come back up. On Thursday, they started my radiation treatments again so I only missed 2 days last week (Tues & Wed). Overall, these kinds of minor delays in the treatment don't affect the efficacy of the treament or the number of treatments (for either chemo or radiation).
I'm scheduled to have my final chemo treatment tomorrow and, given how well I'm feeling, I'm pretty confident the my wbc count should be more than enough for me to receive it. As for radiation treatments, I've now had 22 and have 6 left to go. If all goes well, I should get 5 this week (i.e. m-f) and have my last one a week from tomorrow. This week is likely to be pretty rough but things should start improving thereafter.
I'm scheduled to go home for Christmas 3 weeks from today - here's crossing my fingers that all goes well and I can catch that flight.
--Dr. D
I'm scheduled to have my final chemo treatment tomorrow and, given how well I'm feeling, I'm pretty confident the my wbc count should be more than enough for me to receive it. As for radiation treatments, I've now had 22 and have 6 left to go. If all goes well, I should get 5 this week (i.e. m-f) and have my last one a week from tomorrow. This week is likely to be pretty rough but things should start improving thereafter.
I'm scheduled to go home for Christmas 3 weeks from today - here's crossing my fingers that all goes well and I can catch that flight.
--Dr. D
Friday, December 01, 2006
Out of the Hospital
And you probably didn't know I was in it. On Tuesday, my temperature spiked to 101.5 and I was concerned that my wbc count was going down rather than up so I ended up going to MSKCC's urgent care center. There they checked my wbc count and it actually was up a bit to 1200 but they were concerned about the fever as it could indicate some kind of infection so, after consulting w/Dr. I, they decided to keep me for a while and run some blood cultures to see if there was anything going on biological-wise. Other than my temperature being all over the place, I felt pretty good so I wasn't thrilled w/being admitted to the hospital but I figured it was the best way to get well enough for chemo this coming Monday. Wed was pretty boring but I was still running a fever and Thursday was similar. By Thursday, they had run the complete blood cultures and they were negative and my wbc count was up to 2200 but I was still having some small fevers so they decided to keep me until Saturday. Luckily, today the doctor decided to let me go, since I was doing so well, as long as I promised to come back if any more problems occurred. So here I am, home :)
--Dr. D
--Dr. D
Monday, November 27, 2006
Sunday, November 26, 2006
Once More unto the Breech Dear Friends, Once More
So tomorrow is it - my final chemo session. Everyone's been saying 'already, that was fast'; I guess my perspective is a bit different :). My only concern is that I have had some slight fevers over the last few nights (not enough to get checked out) which usually indicates that my WBC count is down so I'm hoping that it's not down so far that they won't perform chemo because, as I've said time and again, I certainly don't want any delays. Wish me luck.
Thanksgiving was good. A number of people invited me over, which I really appreciate but, ultimately, I decided that, given that it was Thursday, I didn't want to get too far from MSKCC. I try to push myself but I don't want to be stupid, particularly in these last few weeks. Min ended up cancelling her plans so that I wouldn't have to spend the day alone which was really cool of her. Given that it was kinda last minute, I ended up going online and ordering all of the ingredients to make a Thanksgiving dinner and it was all delivered a few hours ealier - there are some things I really love about living in the city :). Dinner came out well and we just ate and watched movies since it was a rainy day. And, as is typical for Thanksgiving, we had way too much food. I debated whether or not to go to work on Friday but when I got up in the morning to go to radiation, I felt exhausted and kinda blech all over. After radiation, I just came home and went to sleep until about 3 at which point I forced myself to get up and go for a long walk in the park as a way to combat the fatigue. It helped but I was still pretty out of it and did run a slight fever that night. Saturday I felt a bit worse actually and the fatigue was really heavy. Eventually I forced myself out of bed so that I could eat a bit and go for another walk but I spent most of the day in bed feeling exhausted to the bone and still kinda blech all over. Finally got to sleep around 2:30 and had a good night sleep - when I woke up this morning I felt much better than I had in the last couple of days and the fatigue had mostly lifted. Met Min and we went to chinatown for lunch - I hadn't really eaten enough over the last few days and it made a huge difference (went to a place called 'Congee Village' - food was good but the service sucked).
Going to get some sleep now, more tomorrow once I've gone for chemo.
--Dr. D
Thanksgiving was good. A number of people invited me over, which I really appreciate but, ultimately, I decided that, given that it was Thursday, I didn't want to get too far from MSKCC. I try to push myself but I don't want to be stupid, particularly in these last few weeks. Min ended up cancelling her plans so that I wouldn't have to spend the day alone which was really cool of her. Given that it was kinda last minute, I ended up going online and ordering all of the ingredients to make a Thanksgiving dinner and it was all delivered a few hours ealier - there are some things I really love about living in the city :). Dinner came out well and we just ate and watched movies since it was a rainy day. And, as is typical for Thanksgiving, we had way too much food. I debated whether or not to go to work on Friday but when I got up in the morning to go to radiation, I felt exhausted and kinda blech all over. After radiation, I just came home and went to sleep until about 3 at which point I forced myself to get up and go for a long walk in the park as a way to combat the fatigue. It helped but I was still pretty out of it and did run a slight fever that night. Saturday I felt a bit worse actually and the fatigue was really heavy. Eventually I forced myself out of bed so that I could eat a bit and go for another walk but I spent most of the day in bed feeling exhausted to the bone and still kinda blech all over. Finally got to sleep around 2:30 and had a good night sleep - when I woke up this morning I felt much better than I had in the last couple of days and the fatigue had mostly lifted. Met Min and we went to chinatown for lunch - I hadn't really eaten enough over the last few days and it made a huge difference (went to a place called 'Congee Village' - food was good but the service sucked).
Going to get some sleep now, more tomorrow once I've gone for chemo.
--Dr. D
Wednesday, November 22, 2006
WBC Count Update
Had my white blood cell (WBC) count checked this morning and it came out to be 3300, which is back in the safe range. This means I get to continue my radiation treatments without any delays and that I should be good to go for my last chemo treatment on Monday. This is pretty much as Dr. I had predicted on Monday but it's good to see.
--Dr. D
--Dr. D
Monday, November 20, 2006
7 Down, 1 To Go ...
So today I started session 4, round 1. It was a long day as it started at 8 and didn't end until 6. I started by going to radiation in the morning. On Monday, in addition to my radiation treatment, I have to go for bloodwork, and then for a consultation w/my radiation oncologist Dr M. Today, I asked Dr M. why I was having a total of 28 treatments as opposed to, say, 25 or 30 or some other number. He explained that there a point at which the exposure to radiation no longer helps and actually starts making things worse and that they had empirically determined 28 to be the best over a number of years of treaments. A few years ago a comprehensive, nation-wide study was run where half the patients were given 28 days of treatment and the other half were given an additional 20% (i.e. 5) treatments and that the people with the addittional treatments did no better, in fact somewhat worse, than the patients w/the 28 treatments. I asked Dr. M. if he had a citation for the study and it turns out that he ran that study - yet another impressive guy on my team. Overall, for the radition treatments, my throat still feels a bit sore but it hasn't really gotten worse and the fatigue, while there, hasn't been overpowering. Dr M. says that I'm tolerating the radiation well and fatigue in the last week is likely to be my biggest problem.
When I finished w/Dr M., I headed to the other MSKCC campus where I have chemo administered and met w/my oncologist Dr I. The bad news is that my white blood cell count has fallen to 1200. The good news is that it wasn't so low that they couldn't administer chemo and Dr I. expects that it should start trending up. However, I have to go in on Wed morning to have the white blood cell count checked again and if it hasn't improved, they will start me on Neupogen, the drug the use for increasing white blood cell counts. By doing so, my white blood cell count should be fully restored by next Monday so that I can get my final chemo treatment on schedule. I may have to hold off on radiation treatments for a day or two but I'm already scheduled to have Thursday off from it anyway so it shouldn't make much of a difference overall and doesn't affect the efficacy of the treatments (I still have to get the full 28 treatements, so it means tacking on another day on at the end). Other than that, all of my vitals look really good. I gained back the weight I lost in the last session of chemo and my hair seems to be coming back (it's growing in faster, thicker and less patchy since the last time I had it shaved). Afterwards, I got all three meds this week - the 2 chemos and the avastin. Takes a while longer because they have to prepare the drugs after I've met w/Dr I. and then administer them all. Luckily, I had a good book w/me (thanks Mike).
This weekend was a lot of fun. The Drowsy Chaperon was good, particularly the narrator, but I have to admit, I didn't enjoy it nearly as much as I enjoyed Spamalot. On Saturday, Min and I went to see Urinetown as performed by the strollers - it was head and hands above other musicals I've seen staged by the strollers before; all of the singers were fantastic, the choreography (always our weakest point) was way beyond anything we've been able to do in the past, the orchestra was outstanding and kept to a sound level that didn't overpower the cast, and the cast was miked w/o any technical glitches. The biggest problem is what musical to follow that up w/next year - the bar has been raised pretty high. When I got to the theatre, I picked up our tickets and sat down to wait for the doors to open; members of the strollers kept walking past w/o recognizing me and I realized that they hadn't seen me since I shaved my head so I started introducing myself which resulted in a lot of shocked looks :). Went to the cast party afterwards but could only stay for a little while because we had to catch the last train back. Sunday, I slept late and then went out to brunch w/Min to a place that was a major improvement over the 1-fish, 2-fish experience and spent the rest of the day mostly lounging around and resting up for today. All-in-all a very pleasent weekend.
until later,
--Dr. D
When I finished w/Dr M., I headed to the other MSKCC campus where I have chemo administered and met w/my oncologist Dr I. The bad news is that my white blood cell count has fallen to 1200. The good news is that it wasn't so low that they couldn't administer chemo and Dr I. expects that it should start trending up. However, I have to go in on Wed morning to have the white blood cell count checked again and if it hasn't improved, they will start me on Neupogen, the drug the use for increasing white blood cell counts. By doing so, my white blood cell count should be fully restored by next Monday so that I can get my final chemo treatment on schedule. I may have to hold off on radiation treatments for a day or two but I'm already scheduled to have Thursday off from it anyway so it shouldn't make much of a difference overall and doesn't affect the efficacy of the treatments (I still have to get the full 28 treatements, so it means tacking on another day on at the end). Other than that, all of my vitals look really good. I gained back the weight I lost in the last session of chemo and my hair seems to be coming back (it's growing in faster, thicker and less patchy since the last time I had it shaved). Afterwards, I got all three meds this week - the 2 chemos and the avastin. Takes a while longer because they have to prepare the drugs after I've met w/Dr I. and then administer them all. Luckily, I had a good book w/me (thanks Mike).
This weekend was a lot of fun. The Drowsy Chaperon was good, particularly the narrator, but I have to admit, I didn't enjoy it nearly as much as I enjoyed Spamalot. On Saturday, Min and I went to see Urinetown as performed by the strollers - it was head and hands above other musicals I've seen staged by the strollers before; all of the singers were fantastic, the choreography (always our weakest point) was way beyond anything we've been able to do in the past, the orchestra was outstanding and kept to a sound level that didn't overpower the cast, and the cast was miked w/o any technical glitches. The biggest problem is what musical to follow that up w/next year - the bar has been raised pretty high. When I got to the theatre, I picked up our tickets and sat down to wait for the doors to open; members of the strollers kept walking past w/o recognizing me and I realized that they hadn't seen me since I shaved my head so I started introducing myself which resulted in a lot of shocked looks :). Went to the cast party afterwards but could only stay for a little while because we had to catch the last train back. Sunday, I slept late and then went out to brunch w/Min to a place that was a major improvement over the 1-fish, 2-fish experience and spent the rest of the day mostly lounging around and resting up for today. All-in-all a very pleasent weekend.
until later,
--Dr. D
Thursday, November 16, 2006
Halfway There
Today I had my 14th radiation treatment out of a total of 27 which means I am halfway there and it's all downhill from here. Still handling the radiation pretty well, my throat's a bit raw but nothing significant yet. Chemo starts up again on Monday so those next two weeks are likely to be the hardest. I'm rugging up for it at the moment mostly by trying to keep active and eating and sleeping. Sleeping is the hardest tho, I only seem to be able to sleep about 6 hours a night - I will meet w/both Dr I and Dr M on Monday so I'm going to ask them about possible causes of the insomnia and ways to deal w/it. Still, I can just deal w/it for the next couple of weeks if necessary.
So tonight I'm going to see 'Borat' - I'm a bit dubius about the whole thing but I'm going w/a friend who lived in Kazakhstan for 3 years so it should be interesting to hear his views. Tomorrow night I'm going to a broadway show 'The Drowsy Chaperon' and on Saturday to 'Urinetown' in m/so. Still haven't decided what to do on Sunday so I'm going to give it a think but overall it's shaping up to be a good weekend.
Been listening to satellite radio and loving it. A lot of great songs that I'd completely forgotten about and new stuff that's really cool - at this point I recommend it to anyone who's getting tired of broadcast stations.
Finally watched 'Dinner at 8' the other night - really cool movie. Old style of movie making, looks and sounds like a play - the acting was fun and the dialogue was great.
Gotta head to the movie, wish me luck ;)
--Dr. D
So tonight I'm going to see 'Borat' - I'm a bit dubius about the whole thing but I'm going w/a friend who lived in Kazakhstan for 3 years so it should be interesting to hear his views. Tomorrow night I'm going to a broadway show 'The Drowsy Chaperon' and on Saturday to 'Urinetown' in m/so. Still haven't decided what to do on Sunday so I'm going to give it a think but overall it's shaping up to be a good weekend.
Been listening to satellite radio and loving it. A lot of great songs that I'd completely forgotten about and new stuff that's really cool - at this point I recommend it to anyone who's getting tired of broadcast stations.
Finally watched 'Dinner at 8' the other night - really cool movie. Old style of movie making, looks and sounds like a play - the acting was fun and the dialogue was great.
Gotta head to the movie, wish me luck ;)
--Dr. D
Tuesday, November 14, 2006
Thoughts on the Tanning Booth
Yesterday I met w/my radiation oncologist, Dr. M. As I've mentioned, I meet w/him every monday so he can evaluate my progress and answer any questions I have - and I had a bunch of questions this week. One of the major concerns w/the combined radiation and chemo treatments is your white blood cell count - mine is currently at 3500 which is lower than normal but still in a reasonable range (normal white blood cell count is anywhere from 4500 to 8000; recall mine was at 5400 when they let me out of the hospital 6 weeks back) and, more importantly, it's been holding steady (in fact, slowly increasing). The cutoff for treatment is 2000 at which point they stop treatment temporarily and work on increasing the counts - this is not uncommon but I really don't want any delays. My weight has also been pretty stable over the last couple of weeks which is also good. They make very precise measurements when setting you up for radiation treatments to ensure that the radiation is focused exactly on the affected areas - if you're weight changes by a significant amount (+ or - 15 lbs) it can invalidate those measurements at which point they have to recalibrate everything. Today I found out that I don't get treatment on Thanksgiving and I was disappointed because it extends my treatment time an extra day. I have to have a total of 27 treatments and, as of today, I've had 12. They will do an evaluation a couple of weeks after radiation treatments have finished. Radiation continues to work even after the treatment stops because the radiation damages the cancer cells and they die off over time (cancer cells, unlike normal cells, do not have the ability to repair themselves) so they wait before doing the evaluation so they can see the full effect of the treatment.
Overall, I'm doing okay so far this week but still feeling a little queazy and fatigued. Not sure if it's radiation or the remnants of the cold I had this weekend but I've been taking it easy. Dropped in to see the master barber yesterday and my head is nice and shiny once again. Looking forward to seeing Urinetown this weekend (no 'ur in town' cracks from theatre members please).
cheers all,
--Dr. D
Overall, I'm doing okay so far this week but still feeling a little queazy and fatigued. Not sure if it's radiation or the remnants of the cold I had this weekend but I've been taking it easy. Dropped in to see the master barber yesterday and my head is nice and shiny once again. Looking forward to seeing Urinetown this weekend (no 'ur in town' cracks from theatre members please).
cheers all,
--Dr. D
Sunday, November 12, 2006
A Decent Weekend
Felt pretty good on Friday and had a good day at work. During the evening, my temperature spiked a bit and finally got to the point (100.5) that I had to go to the urgent care center so they could check my blood cell count. My blood cell count was fine; turns out I just had a slight cold so they sent me home and told me to take it easy for the rest of the weekend and drink plenty of fluids and eat soup. Slept kinda late on Saturday and my friend Alex came by for a visit in the afternoon/early evening, which was cool. Somewhere around 9:00 on Saturday, whatever was left of my insomnia dropped away and the fatigue finally enveloped me - I drifted off and slept all through the night and have spent most of the day in bed either sleeping or doing soduko. Feel really rested for the first time in quite some time.
No chemo this week but I do continue on with radiation. I should feel pretty good but the third week of radiation is when the side-effects start to manifest themselves so I'll just have to see.
Still planning to go out and have some fun this week while I'm off chemo - hopefully some movies and dinners out. Also planning to go to m/so on Saturday to see the final show of the theatre group's fall musical, Urinetown (and, of course, the party afterwards). Probably head to m/so a bit early so I can hang out for a while before the show.
I'll keep you posted on my progress,
--Dr. D
No chemo this week but I do continue on with radiation. I should feel pretty good but the third week of radiation is when the side-effects start to manifest themselves so I'll just have to see.
Still planning to go out and have some fun this week while I'm off chemo - hopefully some movies and dinners out. Also planning to go to m/so on Saturday to see the final show of the theatre group's fall musical, Urinetown (and, of course, the party afterwards). Probably head to m/so a bit early so I can hang out for a while before the show.
I'll keep you posted on my progress,
--Dr. D
Thursday, November 09, 2006
Feeling Fine
Just a short note tonght to let you know I'm feeling pretty good overall today, particularly for a round 2 Thursday. Still have a little nausea but it hasn't been too bad these last few days. My biggest problem is fatigue at the moment; I haven't slept too well for the last couple of days due to the usual chemo-drug induced insomomnia and the radiation has been adding to that. I find myself getting a bit irritable and am doing my best not to take it out on anyone. Hopefully I'll sleep pretty well tonight since I am off those drugs now and that should alleviate the problem considerably. I have next week off of chemo and am looking forward to it but I will continue to have the radiation treatments; still the week should be a lot easier.
As I said, I'm kinda tired so I'm just going to watch the movie 'Dinner at 8', as recommended on this blog, and the off to bed. Will write more when I'm more rested.
G'nite
--Dr. D
As I said, I'm kinda tired so I'm just going to watch the movie 'Dinner at 8', as recommended on this blog, and the off to bed. Will write more when I'm more rested.
G'nite
--Dr. D
Tuesday, November 07, 2006
Done Voted
Feeling a bit better today then yesterday - cramps are gone and I'm just a bit nauseas, nothing I can't handle tho. One thing I've heard that is good for dealing w/nauseau is actully acupunture so I'm going to look into finding an acupuntutrist and try to set something up over the next couple of days.
Took today off of work, I had a whole bunch of things which needed tending to, including voting, so I decided it was a good use of a leave day. Voting involved going out to m/so because I still list there as my primary residency (they even tried drafting me for Jury Duty a few weeks back). Since I was out there, I hooked up w/Dave and Jerry for lunch; we went to the irish pub (sorry Peter) and I got some fantastic fish and chips as a way to counteract Sunday's culinary incident.
Of course the first thing I did today was radiation. Going to radiation at the same time every day, I've started to run into the same people in the waiting room and cancer patients actually tend to be pretty friendly people, by and large, as we're all going through this together. The hardest thing about being there every day is that I've started seeing a number of kids who are also going through treatment and it breaks my heart every time. As I understand it, kids have to take lower doses of treatments and so their therapy gets extended out over a longer period of time - I don't know how they do it. As I was waiting today, a kid comes running into the waiting room followed shortly by his mother. A few minutes later, their nurse comes walking in and starts making some small talk w/them which goes something like "So, what are you going to do today afterwards?" to which the mother reponds "Oh, we're going to the zoo in central park - not the biggest zoo but it's close" and the nurse says "oh that'll be fun, it's a nice day for it" and the mother says "this weekend the ronald macdonald house is going to take us to the bronx zoo and I've heard that's pretty big" and so on until they left a few minutes later. When I got home, the first thing I did was to go online and make a donation to the ronald macdonald house charity - kinda figured it help pay for that kid to go to the zoo. It then hit me that, once I've gotten through this, I need to give back to the cancer community by getting involved in some kind of volunteer work or fundraising or activism - it's just the right thing to do. And I expect you all to keep me honest on this.
cheers,
--Dr. D
Took today off of work, I had a whole bunch of things which needed tending to, including voting, so I decided it was a good use of a leave day. Voting involved going out to m/so because I still list there as my primary residency (they even tried drafting me for Jury Duty a few weeks back). Since I was out there, I hooked up w/Dave and Jerry for lunch; we went to the irish pub (sorry Peter) and I got some fantastic fish and chips as a way to counteract Sunday's culinary incident.
Of course the first thing I did today was radiation. Going to radiation at the same time every day, I've started to run into the same people in the waiting room and cancer patients actually tend to be pretty friendly people, by and large, as we're all going through this together. The hardest thing about being there every day is that I've started seeing a number of kids who are also going through treatment and it breaks my heart every time. As I understand it, kids have to take lower doses of treatments and so their therapy gets extended out over a longer period of time - I don't know how they do it. As I was waiting today, a kid comes running into the waiting room followed shortly by his mother. A few minutes later, their nurse comes walking in and starts making some small talk w/them which goes something like "So, what are you going to do today afterwards?" to which the mother reponds "Oh, we're going to the zoo in central park - not the biggest zoo but it's close" and the nurse says "oh that'll be fun, it's a nice day for it" and the mother says "this weekend the ronald macdonald house is going to take us to the bronx zoo and I've heard that's pretty big" and so on until they left a few minutes later. When I got home, the first thing I did was to go online and make a donation to the ronald macdonald house charity - kinda figured it help pay for that kid to go to the zoo. It then hit me that, once I've gotten through this, I need to give back to the cancer community by getting involved in some kind of volunteer work or fundraising or activism - it's just the right thing to do. And I expect you all to keep me honest on this.
cheers,
--Dr. D
Monday, November 06, 2006
Vote Early, Vote Often
And take back the country. Enuf said.
The weekend went pretty well. Lorraine made it out on Friday and the beef stew really hit the spot - my grateful thanks to her. On Saturday, Min and I went to the noguchi museum as planned and it was really cool; worth the trip to Queens if u're ever up this way. I hadn't had a chance to eat beforehand so I made my first ever stop at 'White Castle' (been wanting to try it ever since seeing 'Harold and Kumar Go To White Castle') which will likely be my last visit to white castle (not that its any worse than any other fast food place but it's certainly not any better :). Afterwards, we spent the evening watching 'Bridge on the River Kwai' which was also definitely worth the effort.
Sunday was not as spectacular as Friday or Saturday tho. Woke up feeling not so great but spent the morning playing w/some new computer equipment and met Min out for brunch at what can only be described as the worst restaurant I've been to in Manhattan where I had the worst fish and chips that I've ever had (including some dubious freezer-burned fish sticks I once ate while in college). Sometimes you roll the dice and get snake-eyes, I reckon. Avoid 'One Fish Two Fish' if u're ever given the opportnity. After brunch, I went home and was still feeling poorly so I took my temperature and found I had a slight fever (about 99) - not enough to get looked at but enough for me decide to sleep and relax for the rest of the day. In the evening, I watched 'Diner' which has a reputation as a great film but I found it to be long and tedious. Avoid it. Go to white castle instead. Better, watch harold and kumar go to white castle. Still, I did sleep well during the day and all through the night.
Today started Session 3, Round 2. Got up early and went for radiation first then off to the other site for chemo. Dr. I and I spoke for a while but not much to report - things are going well and he's confident that the result of the chemo/radiation/avastin will be good (they're already good - so he's not going out too far on a limb). I actually finished up around 2:30, which was really nice. I feel decent tho not great. I'm a bit fatigued and having some problems w/cramps - nothing major but still not a lot of fun. I expect I'll feel better tomorrow but I'm in for a long evening since I probably won't sleep much tonight (given recent history). So I've got a couple of movies ready to go just in case - comedies this time around :)
That's enough for now, more tomorrow.
--Dr. D
PS - to my sister M, I spent all of the chemo session doing soduko; not sure if I want to say thanks or not tho ... ;)
The weekend went pretty well. Lorraine made it out on Friday and the beef stew really hit the spot - my grateful thanks to her. On Saturday, Min and I went to the noguchi museum as planned and it was really cool; worth the trip to Queens if u're ever up this way. I hadn't had a chance to eat beforehand so I made my first ever stop at 'White Castle' (been wanting to try it ever since seeing 'Harold and Kumar Go To White Castle') which will likely be my last visit to white castle (not that its any worse than any other fast food place but it's certainly not any better :). Afterwards, we spent the evening watching 'Bridge on the River Kwai' which was also definitely worth the effort.
Sunday was not as spectacular as Friday or Saturday tho. Woke up feeling not so great but spent the morning playing w/some new computer equipment and met Min out for brunch at what can only be described as the worst restaurant I've been to in Manhattan where I had the worst fish and chips that I've ever had (including some dubious freezer-burned fish sticks I once ate while in college). Sometimes you roll the dice and get snake-eyes, I reckon. Avoid 'One Fish Two Fish' if u're ever given the opportnity. After brunch, I went home and was still feeling poorly so I took my temperature and found I had a slight fever (about 99) - not enough to get looked at but enough for me decide to sleep and relax for the rest of the day. In the evening, I watched 'Diner' which has a reputation as a great film but I found it to be long and tedious. Avoid it. Go to white castle instead. Better, watch harold and kumar go to white castle. Still, I did sleep well during the day and all through the night.
Today started Session 3, Round 2. Got up early and went for radiation first then off to the other site for chemo. Dr. I and I spoke for a while but not much to report - things are going well and he's confident that the result of the chemo/radiation/avastin will be good (they're already good - so he's not going out too far on a limb). I actually finished up around 2:30, which was really nice. I feel decent tho not great. I'm a bit fatigued and having some problems w/cramps - nothing major but still not a lot of fun. I expect I'll feel better tomorrow but I'm in for a long evening since I probably won't sleep much tonight (given recent history). So I've got a couple of movies ready to go just in case - comedies this time around :)
That's enough for now, more tomorrow.
--Dr. D
PS - to my sister M, I spent all of the chemo session doing soduko; not sure if I want to say thanks or not tho ... ;)
Friday, November 03, 2006
Session 3 a Lot Like Session 2 (whew)
Hi All - I've been a bit remiss on posting this week, my apologies but I have been trying to keep myself busy and it's worked out pretty well. Session 3, Round 1 has been a lot like Session 2, Round 1. Overall I've felt pretty good just a bit nauseas and I'm getting used to dealing w/that; my concentration is still not 100% but pretty decent overall. Today is Friday, which is generally my worst day. I plan to leave work a little early and take it easy at home tonight. Lorraine is bringing over some beef stew later and will hang out for a while - I really appreciate that.
For the weekend, I'm planning to go to the Noguchi Museum in Queen's on Saturday and hopefully some kind of brunch in Soho on Sunday. Maybe go see a movie if I can find anything interesting. Last Friday, I saw 'The Science of Sleep' - not a perfect movie but really imaginative and definitely worth viewing.
Got some cards recently and would like to thank everyone for sending them - they always puts a smile on my face. My sister, M, sent me another care package. More movies and food and this time I also got 'magnetics' - a magnet based building toy that she had great success with in her kindergarten class so she figured it would be good for me :) And she was right.
I also bought a satellite radio yesterday. Been using an ipod for the last few years but the problem w/it has been that I never get exposed to new music and end up listening to the same music over and over. But even in NYC, I've not been very happy with broadcast radio. T got satellite about a year ago and he's been raving about it ever since (Jerry has it too and also likes it - but he's a Howard Stern fan so it's harder to take him seriously). So I got the unit last night after work and set it up, which is what kept me busy last night, and will be playing with it over the weekend. Anyone who has Sirius Satellite service let me know what channels you tend to like.
regards,
--Dr. D.
For the weekend, I'm planning to go to the Noguchi Museum in Queen's on Saturday and hopefully some kind of brunch in Soho on Sunday. Maybe go see a movie if I can find anything interesting. Last Friday, I saw 'The Science of Sleep' - not a perfect movie but really imaginative and definitely worth viewing.
Got some cards recently and would like to thank everyone for sending them - they always puts a smile on my face. My sister, M, sent me another care package. More movies and food and this time I also got 'magnetics' - a magnet based building toy that she had great success with in her kindergarten class so she figured it would be good for me :) And she was right.
I also bought a satellite radio yesterday. Been using an ipod for the last few years but the problem w/it has been that I never get exposed to new music and end up listening to the same music over and over. But even in NYC, I've not been very happy with broadcast radio. T got satellite about a year ago and he's been raving about it ever since (Jerry has it too and also likes it - but he's a Howard Stern fan so it's harder to take him seriously). So I got the unit last night after work and set it up, which is what kept me busy last night, and will be playing with it over the weekend. Anyone who has Sirius Satellite service let me know what channels you tend to like.
regards,
--Dr. D.
Subscribe to:
Posts (Atom)
